The folks in this video have or are related to a person that has Tuberous Sclerosis (TS for short). If you would like to know more about TS, you can uncover loads of information. at the TS Alliance web web site here: www.tsalliance.org I do hope you enjoy the video. Thank you for watching. ...
Video Rating: four / five
Wednesday, May 18, 2011
The many faces of Tuberous Sclerosis
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16 comments:
i have tsc i was 5 when i found out
&& tsc has made me strong i hope
to meet others with it add me &
hopefully we can become friends
Thanks so much, my sister have it, she is 27 now, my sister is in near-vegetative state since she was 15 years and for survive needs to be fed by a gastric tube because the esophagus does not work. I'm so sad because every day is nearest to her dead, and I'm scared too, she is really sick, but I love her.
Sorry for my bad english, I hope you understand. All my love from Spain.
i noticed some of my friends were in ur vid! awesome job too!
my grandson was 1 month old when i noticed he was possibly having seizures i went on you tube and typed in infant seizures sure enough he was having infantile spasms 3 months later he was diagnosed with tuberous sclerosis and 1p36 deletin syndrome hes 9 months now
my lil brother is 12 and has TS...i love him with all my heart...i sometimes feel so said that i fight with him all the time :'( i feel like crying now :(
Thank you. My daughter has TS and it helps to remember that we are not alone.
Gracias desde Mexico, thanks from mexico.
my daughter of 8 years old has T.S.
I have it
i have tuberous sclerosis
I was born with it
My Brother is 12, and he was diagnosed with T.S. when he was 2. He spent 8 weeks in the Hospital this summer having a tumor in his brain removed. He also has them in his Heart, Lungs, Eyes and Kidneys. He also has seizures severaltimes a month. It's scary, but I have lived with it all my life.
Thank you :)
Very nice video
Good luck to you and your loved ones, and many blessings
Thank you so much I'm glad you liked it :)
beautiful video, many thanks!
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